Links

Links

Cancergenetics.eu 

• Radboudumc & ERN GENTURIS (2018): Information for health professionals and patients considering a genetic test to look for ​​​​​​​an inherited cause of cancer
  

GENTURIS Registry

• https://genturis-registry.eu

European Reference Networks

• General information on European Reference Networks
• Policy of the European Commision to create European Reference Networks
• Videos on European Reference Networks
• List of all European Reference Networks

Patient associations

• Patient associations for hereditary cancer syndromes

Other

• Dutch language website on heritable stomach cancer
• Information on patients’ rights with regard to cross-border healthcare in the European Union
• Orphanet, the portal for rare diseases and orphan drugs
• Genetics Home Reference: a U.S. website providing consumer-friendly information about the effects of genetic variation on human health 
• Genetic Alliance UK & EuroGentest (2009): Predictive Testing for Inherited Cancer