20230611 ESHG workshop
This Get2gether was aimed at presenting and raising awareness about the presence and the usefulness of the European Reference Networks (usefulness of the Clinical patient management system (CPMS), teaching activities, registries and research in the frame of ERNs) and at promoting networking and professional connections among those clinically and academically interested in rare diseases.
Besides ERN GENTURIS coordinator Prof. Nicoline Hoogerbrugge, contributions were made by Prof. Helene Dollfus, coordinator of ERN EYE, Prof. Alain Verloes, coordinator of ERN EPICARE, and Dr. Holm Graessner, coordinator ERN RDN.
A general discussion with the audience occurred at the end of the presentations both in person and by asking poll-questions to the audience (both those who attend from home and those who were present). The workshop was attended by 150 participants.
Workshop Title: Get2Gether European Reference Networks
Date: June 11, 2023
Session type: Live Event
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