Communication materials

Communication materials

European commission communication materials

• General ERNs brochure
• Booklet - European Reference Networks: A success story for patients living with a rare disease - Public Health
• Factsheet 1: Patient story - Onni (Available for download in all 24 official EU languages)
• Factsheet 2: approval, evaluation and EU funding (Available for download in all 24 official EU languages)
• ERN Patient flyer

ERNs communication materials

• General ERN video (ERN eUROGEN coordinator Prof. Peter Mulders)

ERN GENTURIS posters

• ERN GENTURIS poster - General
• ERN GENTURIS poster - Roadmap

ERN GENTURIS booklets

Thematic group 1: Schwannomatosis and Neurofibromatosis

• Neurofibromatosis 1
• NF2-related schwannomatosis
• Non-NF2-related schwannomatosis

Thematic group 2: Lynch syndrome and polyposis

• Lynch syndrome