Communication materials

Communication materials

European commission communication materials::

• General ERNs brochure
• Booklet - European Reference Networks. A success story for patients living with a rare disease - Public Health
• Factsheet: ERNs - A flagship EU action helping patients with rare, low-prevalence, and complex diseases (Available for download in all 24 official EU languages)
• ERN Patient flyer

ERNs communication materials:

• General ERN video (ERN eUROGEN coordinator Prof. Peter Mulders)

ERN GENTURIS posters

• ERN GENTURIS poster - General
• ERN GENTURIS poster - Roadmap

ERN GENTURIS booklets:

• Thematic group 1: Schwannomatosis and Neurofibromatosis
  • Neurofibromatosis 1
  • NF2-related schwannomatosis
  • Non-NF2-related schwannomatosis