CPMS

Clinical Patient Management System

ERN members have access to the Clinical Patient Management System.The Clinical Patient Management System (CPMS), is a secure web-based application that supports the European Reference Networks in the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders.

This system can be used to discuss complex patient cases within and across ERNs.

The CPMS is a secure Software as a Service (SaaS) that enables health professionals to enroll patients using comprehensive data models. Health professionals can use the CPMS to collaborate actively and share patient data within and across ERNs.

Access to the Clinical Patient Management System (CPMS) is strictly regulated to protect the data privacy rights of the patients. Only authenticated users (EU Login) can request authorisation (SAAS) from the ERN to use the CPMS. Each ERN has member Healthcare Provider centres (HCP) and it is envisaged that the users of CPMS are either Healthcare Professionals (HP) within these HCPs, or otherwise HPs authorised as guest users by the relevant ERN coordinator.

For those who are working in one of our member centres and have not registered, below is a guide to creating your EU Login, and applying for access to CPMS. If you require any additional help with this process, please email the ERN GENTURIS Helpdesk: genturis@radboudumc.nl. 

 

ERN GENTURIS policy for CPMS

Consultation requests will be organized in three categories:
a) variant level; entails questions regarding the pathogenicity of a variant (lab experts),
b) genetic level; entails questions regarding risk and clinical genetic management (clinical geneticists),
c) intervention level: entails questions regarding treatment, surveillance and prevention (clinical geneticist, oncologists, neurologists, dermatologist, etc.).

The CPMS and the case discussions are only meant for those clinicians directly involved in providing care for genturis patients, who have a question about the actual care for one of their genturis patients. Thus, the CMPS meetings are the online equivalent of multidisciplinary case discussions in a hospital. CPMS meetings are not research meetings nor journal clubs; time is limited and discussions should focus only on the patient case. For any other question, other platforms should be used.

 

Authorised ERN GENTURIS Members can access the Clinical Patient Management System (restricted area) here: ERN CPMS

If you are planning to upload patient data in the CPMS, you will need to get consent from the patient first. You can find the CPMS consent forms in multiple languages here.

 

In the CPMS guides section, you can find links and information to support you in using CPMS.