Referring a patient

Referring a patient 

How to refer a patient to ERN GENTURIS

• Your hospital must be located in an EU or EEA Member State;
  
  
• Recommended: download our Expert Advice Request Form, fill it in, and send it to your nearest ERN GENTURIS healthcare providing centre (HCP) contact (if your country does not have a healthcare provider within ERN GENTURIS, contact an ERN GENTURIS HCP in a country near to yours). The HCP contact will decide if the patient will be enrolled in the Clinical Patient Management System (CPMS) for further consultation with ERN GENTURIS members, or if your query can be answered by the HCP itself.
  
  
• If the ERN GENTURIS HCP contact indicates the case should be discussed in the CPMS, you must be willing to obtain full informed consent from the patient to share their data using the CPMS. To obtain informed consent, you can use the CPMS Informed Consent Form (translations in 24 languages are available here), but please note that all local rules regarding obtaining informed consent at your hospital should be followed.
  
  

OR

If you are the attending physician, you can request a CPMS guest user account for a short time period to access the system, in which case you must be willing to invest some time to apply for the account and to upload the patients’ medical information, including any relevant imaging into the CPMS in order for their case to be discussed by our panel of experts. If you would like to make use of this option, please contact our CPMS helpdeskmanager via jurriaan.holzenspies@radboudumc.nl before you request access to the CPMS.
 

• After your patient has been discussed in the CPMS, you will receive an ERN Outcome Report document from our panel of experts with highly specialised advice on diagnosis or treatment of the patient concerned, based upon the latest current available scientific knowledge.
  
  
• You understand that ERN GENTURIS can only provide expert highly specialised multi-disciplinary advice – all legal liability and responsibility for the patient rests, as it has always done, with the clinician and healthcare provider treating the patient where the patient lives.

 

 

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