Research

GENTURIS registry

The GENTURIS registry is a web-based platform that facilitates standardized data registration and sharing of data across Europe to improve diagnostics, treatment and disease prevention in patients with a genetic tumour risk syndrome (GENTURIS).

ERN GENTURIS research projects

Overview of ongoing collaborative ERN GENTURIS research projects. 

ERN GENTURIS research policy and rules of governance

The aim of the research policy is to guide ERN GENTURIS’s research activities for the upcoming 5 years.

The rules of governance apply to collaborative research involving ERN GENTURIS and are aimed at promoting and regulating the network research activities in the field.

 

ERN GENTURIS publications

Overview of publications either involving ERN GENTURIS members or endorsed by ERN GENTURIS.

 

Monthly journal round-up

Monthly journal round-up by the UK Cancer Genetics Group, ERN GENTURIS & the GENTURIS Registry, and ICARE.

 

Other research information

An overview of rare disease research & infrastructural programs or networks that the ERN GENTURIS participates in is available here.