ERN GENTURIS tumour surveillance guidelines for individuals with neurofibromatosis type 1

Authors: Charlotte Carton, D. Gareth Evans, Ignacio Blanco, Reinhard E. Friedrich, Rosalie E. Ferner, Said Farschtschi, Hector Salvador, Amedeo A. Azizi, Victor Mautner, Claas Röhl, Sirkku Peltonen, Stavros Stivaros, Eric Legius, and Rianne Oostenbrink,* On behalf of the ERN GENTURIS NF1 Tumour Management Guideline Group.

Full guideline document

Journal Publication¹

Pocket guide²

Plain language summary³

Download the complete guidelines here.

Published online on 16 January 2023 in eClinicalMedicine: https://doi.org/10.1016/j.eclinm.2022.101818

The guide is available in the following languages (click on a flag to download the correspond language version):  

                 

The plain language summary is available in the following languages (click on a flag to download the correspond language version): 



¹ The journal publication is a concise version of the full guideline document, published in a peer-reviewed journal.

² The pocket guide is the guideline summary presented on a pocket card.

³ The plain language summary provides a clear summary of the guideline using non-technical language, making it accessible to a wider network of readers including patients.