Guidelines and pathways
ERN GENTURIS develops new clinical guidelines and endorses existing ones.
Clinical practice guidelines are recommendations for clinicians about how to diagnose, treat, or perform surveillance of patients with specific conditions. These guidelines are based on the best available research evidence and/or expert opinion.
Care pathways are guides for healthcare professionals that describe the various tasks involved in the care for patients with a specific condition using evidence-based practice.
Patient journeys give an overview of a patient's experience during a specific treatment.